You’ve probably heard about the mind-body connection before. Today, holistic health—or the concept that our minds, bodies, and spirits all play a role in our well-being—has been embraced by doctors, hospitals, and researchers. Now that it’s becoming better understood, holistic health can have a significant impact on how you manage the symptoms and uncertainty of primary biliary cholangitis (PBC).
A holistic health approach that addresses your physical, emotional, and social needs can restore balance, allowing you to better cope with your condition. Here are a few reasons to make holistic health a part of your life with PBC:
1. You’re more than your liver biomarkers
When dealing with a chronic condition like PBC, it's common for both healthcare providers and individuals to focus mainly on biochemical markers. Knowing your numbers, like ALP, plays an important role in monitoring the progression of the disease. However, it's equally important to remember that your well-being is not solely determined by these numbers.
Often, doctors might unintentionally overlook the profound impact PBC has on your daily life. While labs can provide insights into the physical aspects, they may not capture the emotional, mental, and social challenges you face. It's important to communicate openly with your healthcare team about how PBC affects you beyond the lab results. Your voice matters, and your experiences can guide them in providing more personalized care.
2. Your mental health is just as important as your physical health
It's common to experience feelings of depression and anxiety when dealing with the symptoms of PBC. People with chronic liver disease may feel a loss of purpose or impaired ability to complete their usual activities. You’re not alone if you’re experiencing this. Be sure to tell your doctor so you can get proper help.
Mindfulness and meditation may play a part in helping to address some of the stress, anxiety, and feelings of sadness that often come with trying to manage a challenging condition like PBC. The deep breathing exercises of meditation can not only help improve your mental and emotional state of mind, but they can also have a positive effect on your body. It's about finding a quiet moment to relax and connect with your inner self. Meditation can act as a soothing balm for your soul, that helps you navigate the ups and downs of PBC with grace and resilience.
3. Coping with fatigue can be exhausting
Fatigue is a common symptom of PBC and can significantly impact your quality of life. Even a few small adjustments to your daily routine can make a big difference:
Prioritize rest: listen to your body and rest when needed. Avoid overexertion and don't hesitate to ask for help. If you’re working, consider having a candid conversation with your employer about whether accommodations are possible.
Manage your energy: pay attention to patterns—like the parts of the day when you tend to feel best. Then plan important activities for the times when you’re least likely to experience fatigue.
Movement matters: incorporating even small incremental movement can boost your energy levels and improve your mood. Start gradually, aiming for light activities like walking or stretching.
4. Building a support network can help
It’s common for people with PBC to feel isolated and alone, especially after first getting diagnosed. However, it can be helpful to connect with others who understand your journey. Joining support groups or reaching out to friends and family can provide emotional comfort. Here are some of the leading PBC advocacy groups.
You are more than your diagnosis
Living with PBC is undoubtedly a challenge, but it doesn't define who you are. By recognizing the multidimensional impact of PBC and adopting a holistic approach, you can take charge of your well-being. Remember that you're not alone on this journey, and there are resources and communities available to support you. There are many resources to help you navigate the challenges of PBC while focusing on living a fulfilling and meaningful life.
