REALITY
PBC is not your fault.
It’s a chronic autoimmune condition you didn’t cause, didn’t want, and certainly don’t need to be judged for.
REALITY
With PBC, rest isn’t a choice—it’s a necessity.
Fatigue is a real symptom of PBC. That means knowing your limits, pacing yourself, and, sometimes, having a date with your couch.
REALITY
PBC can progress, even without symptoms.
Research shows there’s no connection between the symptoms you experience and the severity of your disease. So, keep those check-up appointments––and add "sneaky" to the list of reasons why you don't like PBC.
MISCONCEPTION
There’s nothing your doctor can do for pruritus, so it’s pointless to bring it up.
Get the answerREALITY
Your doctor needs the whole story. Period.
If you’re experiencing pruritus, don’t hold back. Tell your doctor what it feels like and how it affects your life. Even if there’s no easy fix, just saying it aloud can be its own kind of therapy.
Spread Your Truth
It’s tempting to stay quiet about PBC—especially when you fear being doubted, dismissed, or blamed. But if enough voices share the facts, the truth will catch on. So start talking about your experience. The minds you change today may help someone else tomorrow.
Actor portrayal
What Is PBC? An Expert Discusses the PBC Facts You’ve Been Searching For
Get a comprehensive overview of PBC—the symptoms, stages, treatments, and other info you need to know from Dr Kris Kowdley, a leader in PBC research and care.
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